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Solo For Livie Challenge Photos

28 June 2020; Rory O'Connor of Rory Stories with members of Skryne GAA Club during the Solo For Livie Challenge in Ballymagarvey, Meath. The fundraising event is in support of 9 month old Livie Mulhern, from Balrath in Meath. Livie has been diagnosed with a rare and serious genetic neuromuscular condition called spinal muscular atrophy (SMA) type 1. SMA is caused by a gene deletion which results in deterioration of Livie’s nerve cells connecting her brain and spinal cord to her body’s muscles. The money raised from the event will be put towards a once-off gene therapy called Zolgensma, which is currently only available in the USA. It is the worlds most expensive treatment at a cost of $2,100,000. Photo by Ramsey Cardy/Sportsfile

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28 June 2020; Rory O'Connor of Rory Stories with members of...

Editor's Choice

28 June 2020; A member of Skryne GAA Club during the Solo For Livie Challenge in Ballymagarvey, Meath. The fundraising event is in support of 9 month old Livie Mulhern, from Balrath in Meath. Livie has been diagnosed with a rare and serious genetic neuromuscular condition called spinal muscular atrophy (SMA) type 1. SMA is caused by a gene deletion which results in deterioration of Livie’s nerve cells connecting her brain and spinal cord to her body’s muscles. The money raised from the event will be put towards a once-off gene therapy called Zolgensma, which is currently only available in the USA. It is the worlds most expensive treatment at a cost of $2,100,000. Photo by Ramsey Cardy/Sportsfile

1906004

28 June 2020; A member of Skryne GAA Club during the Solo For Livie Challenge...

Editor's Choice

28 June 2020; Rory O'Connor of Rory Stories and Meath football manager Andy McEntee, left, with members of Garristown GAA Club during the Solo For Livie Challenge in Garristown, Meath. The fundraising event is in support of 9 month old Livie Mulhern, from Balrath in Meath. Livie has been diagnosed with a rare and serious genetic neuromuscular condition called spinal muscular atrophy (SMA) type 1. SMA is caused by a gene deletion which results in deterioration of Livie’s nerve cells connecting her brain and spinal cord to her body’s muscles. The money raised from the event will be put towards a once-off gene therapy called Zolgensma, which is currently only available in the USA. It is the worlds most expensive treatment at a cost of $2,100,000. Photo by Ramsey Cardy/Sportsfile

1906032

28 June 2020; Rory O'Connor of Rory Stories and Meath football manager Andy...

28 June 2020; Meath ladies football captain Máire O’Shaughnessy and Meath football manager Andy McEntee during the Solo For Livie Challenge in Ashbourne, Meath. The fundraising event is in support of 9 month old Livie Mulhern, from Balrath in Meath. Livie has been diagnosed with a rare and serious genetic neuromuscular condition called spinal muscular atrophy (SMA) type 1. SMA is caused by a gene deletion which results in deterioration of Livie’s nerve cells connecting her brain and spinal cord to her body’s muscles. The money raised from the event will be put towards a once-off gene therapy called Zolgensma, which is currently only available in the USA. It is the worlds most expensive treatment at a cost of $2,100,000. Photo by Ramsey Cardy/Sportsfile

1906027

28 June 2020; Meath ladies football captain Máire O’Shaughnessy and Meath...

28 June 2020; Rory O'Connor of Rory Stories with members of Skryne GAA Club during the Solo For Livie Challenge in Ballymagarvey, Meath. The fundraising event is in support of 9 month old Livie Mulhern, from Balrath in Meath. Livie has been diagnosed with a rare and serious genetic neuromuscular condition called spinal muscular atrophy (SMA) type 1. SMA is caused by a gene deletion which results in deterioration of Livie’s nerve cells connecting her brain and spinal cord to her body’s muscles. The money raised from the event will be put towards a once-off gene therapy called Zolgensma, which is currently only available in the USA. It is the worlds most expensive treatment at a cost of $2,100,000. Photo by Ramsey Cardy/Sportsfile

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28 June 2020; Rory O'Connor of Rory Stories with members of Skryne GAA Club...

28 June 2020; Rory O'Connor of Rory Stories with former Meath footballer Trevor Giles, left, during the Solo For Livie Challenge in Ballymagarvey, Meath. The fundraising event is in support of 9 month old Livie Mulhern, from Balrath in Meath. Livie has been diagnosed with a rare and serious genetic neuromuscular condition called spinal muscular atrophy (SMA) type 1. SMA is caused by a gene deletion which results in deterioration of Livie’s nerve cells connecting her brain and spinal cord to her body’s muscles. The money raised from the event will be put towards a once-off gene therapy called Zolgensma, which is currently only available in the USA. It is the worlds most expensive treatment at a cost of $2,100,000. Photo by Ramsey Cardy/Sportsfile

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28 June 2020; Rory O'Connor of Rory Stories with former Meath footballer Trevor...

28 June 2020; Rory O'Connor of Rory Stories with members of Skryne GAA Club during the Solo For Livie Challenge in Ballymagarvey, Meath. The fundraising event is in support of 9 month old Livie Mulhern, from Balrath in Meath. Livie has been diagnosed with a rare and serious genetic neuromuscular condition called spinal muscular atrophy (SMA) type 1. SMA is caused by a gene deletion which results in deterioration of Livie’s nerve cells connecting her brain and spinal cord to her body’s muscles. The money raised from the event will be put towards a once-off gene therapy called Zolgensma, which is currently only available in the USA. It is the worlds most expensive treatment at a cost of $2,100,000. Photo by Ramsey Cardy/Sportsfile

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28 June 2020; Rory O'Connor of Rory Stories with members of Skryne GAA Club...

28 June 2020; Rory O'Connor of Rory Stories and Meath football manager Andy McEntee, left, with members of Garristown GAA Club during the Solo For Livie Challenge in Garristown, Meath. The fundraising event is in support of 9 month old Livie Mulhern, from Balrath in Meath. Livie has been diagnosed with a rare and serious genetic neuromuscular condition called spinal muscular atrophy (SMA) type 1. SMA is caused by a gene deletion which results in deterioration of Livie’s nerve cells connecting her brain and spinal cord to her body’s muscles. The money raised from the event will be put towards a once-off gene therapy called Zolgensma, which is currently only available in the USA. It is the worlds most expensive treatment at a cost of $2,100,000. Photo by Ramsey Cardy/Sportsfile

1906034

28 June 2020; Rory O'Connor of Rory Stories and Meath football manager Andy...

28 June 2020; Rory O'Connor of Rory Stories and Meath football manager Andy McEntee, left, with members of Garristown GAA Club during the Solo For Livie Challenge in Garristown, Meath. The fundraising event is in support of 9 month old Livie Mulhern, from Balrath in Meath. Livie has been diagnosed with a rare and serious genetic neuromuscular condition called spinal muscular atrophy (SMA) type 1. SMA is caused by a gene deletion which results in deterioration of Livie’s nerve cells connecting her brain and spinal cord to her body’s muscles. The money raised from the event will be put towards a once-off gene therapy called Zolgensma, which is currently only available in the USA. It is the worlds most expensive treatment at a cost of $2,100,000. Photo by Ramsey Cardy/Sportsfile

1906033

28 June 2020; Rory O'Connor of Rory Stories and Meath football manager Andy...

28 June 2020; Rory O'Connor of Rory Stories and Meath football manager Andy McEntee, left, with members of Garristown GAA Club during the Solo For Livie Challenge in Garristown, Meath. The fundraising event is in support of 9 month old Livie Mulhern, from Balrath in Meath. Livie has been diagnosed with a rare and serious genetic neuromuscular condition called spinal muscular atrophy (SMA) type 1. SMA is caused by a gene deletion which results in deterioration of Livie’s nerve cells connecting her brain and spinal cord to her body’s muscles. The money raised from the event will be put towards a once-off gene therapy called Zolgensma, which is currently only available in the USA. It is the worlds most expensive treatment at a cost of $2,100,000. Photo by Ramsey Cardy/Sportsfile

1906031

28 June 2020; Rory O'Connor of Rory Stories and Meath football manager Andy...

28 June 2020; Rory O'Connor of Rory Stories crosses the finish line of the Solo For Livie Challenge in Garristown, Meath. The fundraising event is in support of 9 month old Livie Mulhern, from Balrath in Meath. Livie has been diagnosed with a rare and serious genetic neuromuscular condition called spinal muscular atrophy (SMA) type 1. SMA is caused by a gene deletion which results in deterioration of Livie’s nerve cells connecting her brain and spinal cord to her body’s muscles. The money raised from the event will be put towards a once-off gene therapy called Zolgensma, which is currently only available in the USA. It is the worlds most expensive treatment at a cost of $2,100,000. Photo by Ramsey Cardy/Sportsfile

1906030

28 June 2020; Rory O'Connor of Rory Stories crosses the finish line of the Solo...

28 June 2020; Rory O'Connor of Rory Stories with, from left, Meath football manager Andy McEntee, Meath ladies football captain Máire O’Shaughnessy, and Meath mens football captain Bryan Menton during the Solo For Livie Challenge in Ashbourne, Meath. The fundraising event is in support of 9 month old Livie Mulhern, from Balrath in Meath. Livie has been diagnosed with a rare and serious genetic neuromuscular condition called spinal muscular atrophy (SMA) type 1. SMA is caused by a gene deletion which results in deterioration of Livie’s nerve cells connecting her brain and spinal cord to her body’s muscles. The money raised from the event will be put towards a once-off gene therapy called Zolgensma, which is currently only available in the USA. It is the worlds most expensive treatment at a cost of $2,100,000. Photo by Ramsey Cardy/Sportsfile

1906029

28 June 2020; Rory O'Connor of Rory Stories with, from left, Meath football...

28 June 2020; Meath ladies football captain Máire O’Shaughnessy and Meath football manager Andy McEntee during the Solo For Livie Challenge in Ashbourne, Meath. The fundraising event is in support of 9 month old Livie Mulhern, from Balrath in Meath. Livie has been diagnosed with a rare and serious genetic neuromuscular condition called spinal muscular atrophy (SMA) type 1. SMA is caused by a gene deletion which results in deterioration of Livie’s nerve cells connecting her brain and spinal cord to her body’s muscles. The money raised from the event will be put towards a once-off gene therapy called Zolgensma, which is currently only available in the USA. It is the worlds most expensive treatment at a cost of $2,100,000. Photo by Ramsey Cardy/Sportsfile

1906028

28 June 2020; Meath ladies football captain Máire O’Shaughnessy and Meath...

28 June 2020; Meath football captain Bryan Menton during the Solo For Livie Challenge in Ashbourne, Meath. The fundraising event is in support of 9 month old Livie Mulhern, from Balrath in Meath. Livie has been diagnosed with a rare and serious genetic neuromuscular condition called spinal muscular atrophy (SMA) type 1. SMA is caused by a gene deletion which results in deterioration of Livie’s nerve cells connecting her brain and spinal cord to her body’s muscles. The money raised from the event will be put towards a once-off gene therapy called Zolgensma, which is currently only available in the USA. It is the worlds most expensive treatment at a cost of $2,100,000. Photo by Ramsey Cardy/Sportsfile

1906026

28 June 2020; Meath football captain Bryan Menton during the Solo For Livie...

28 June 2020; Rory O'Connor of Rory Stories with Meath football manager Andy McEntee during the Solo For Livie Challenge in Ashbourne, Meath. The fundraising event is in support of 9 month old Livie Mulhern, from Balrath in Meath. Livie has been diagnosed with a rare and serious genetic neuromuscular condition called spinal muscular atrophy (SMA) type 1. SMA is caused by a gene deletion which results in deterioration of Livie’s nerve cells connecting her brain and spinal cord to her body’s muscles. The money raised from the event will be put towards a once-off gene therapy called Zolgensma, which is currently only available in the USA. It is the worlds most expensive treatment at a cost of $2,100,000. Photo by Ramsey Cardy/Sportsfile

1906025

28 June 2020; Rory O'Connor of Rory Stories with Meath football manager Andy...

28 June 2020; Rory O'Connor of Rory Stories with Meath ladies football captain Máire O’Shaughnessy during the Solo For Livie Challenge in Ashbourne, Meath. The fundraising event is in support of 9 month old Livie Mulhern, from Balrath in Meath. Livie has been diagnosed with a rare and serious genetic neuromuscular condition called spinal muscular atrophy (SMA) type 1. SMA is caused by a gene deletion which results in deterioration of Livie’s nerve cells connecting her brain and spinal cord to her body’s muscles. The money raised from the event will be put towards a once-off gene therapy called Zolgensma, which is currently only available in the USA. It is the worlds most expensive treatment at a cost of $2,100,000. Photo by Ramsey Cardy/Sportsfile

1906023

28 June 2020; Rory O'Connor of Rory Stories with Meath...

28 June 2020; Rory O'Connor of Rory Stories with Meath football manager Andy McEntee during the Solo For Livie Challenge in Ashbourne, Meath. The fundraising event is in support of 9 month old Livie Mulhern, from Balrath in Meath. Livie has been diagnosed with a rare and serious genetic neuromuscular condition called spinal muscular atrophy (SMA) type 1. SMA is caused by a gene deletion which results in deterioration of Livie’s nerve cells connecting her brain and spinal cord to her body’s muscles. The money raised from the event will be put towards a once-off gene therapy called Zolgensma, which is currently only available in the USA. It is the worlds most expensive treatment at a cost of $2,100,000. Photo by Ramsey Cardy/Sportsfile

1906024

28 June 2020; Rory O'Connor of Rory Stories with Meath...

28 June 2020; Rory O'Connor of Rory Stories during the Solo For Livie Challenge in Ballymagarvey, Meath. The fundraising event is in support of 9 month old Livie Mulhern, from Balrath in Meath. Livie has been diagnosed with a rare and serious genetic neuromuscular condition called spinal muscular atrophy (SMA) type 1. SMA is caused by a gene deletion which results in deterioration of Livie’s nerve cells connecting her brain and spinal cord to her body’s muscles. The money raised from the event will be put towards a once-off gene therapy called Zolgensma, which is currently only available in the USA. It is the worlds most expensive treatment at a cost of $2,100,000. Photo by Ramsey Cardy/Sportsfile

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28 June 2020; Rory O'Connor of Rory Stories during the Solo For Livie Challenge...

28 June 2020; Rory O'Connor of Rory Stories with a member of Skryne GAA Club during the Solo For Livie Challenge in Ballymagarvey, Meath. The fundraising event is in support of 9 month old Livie Mulhern, from Balrath in Meath. Livie has been diagnosed with a rare and serious genetic neuromuscular condition called spinal muscular atrophy (SMA) type 1. SMA is caused by a gene deletion which results in deterioration of Livie’s nerve cells connecting her brain and spinal cord to her body’s muscles. The money raised from the event will be put towards a once-off gene therapy called Zolgensma, which is currently only available in the USA. It is the worlds most expensive treatment at a cost of $2,100,000. Photo by Ramsey Cardy/Sportsfile

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28 June 2020; Rory O'Connor of Rory Stories with a member of Skryne GAA Club...

28 June 2020; Rory O'Connor of Rory Stories with members of Skryne GAA Club during the Solo For Livie Challenge in Ballymagarvey, Meath. The fundraising event is in support of 9 month old Livie Mulhern, from Balrath in Meath. Livie has been diagnosed with a rare and serious genetic neuromuscular condition called spinal muscular atrophy (SMA) type 1. SMA is caused by a gene deletion which results in deterioration of Livie’s nerve cells connecting her brain and spinal cord to her body’s muscles. The money raised from the event will be put towards a once-off gene therapy called Zolgensma, which is currently only available in the USA. It is the worlds most expensive treatment at a cost of $2,100,000. Photo by Ramsey Cardy/Sportsfile

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28 June 2020; Rory O'Connor of Rory Stories with members of...

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